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This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.

Staying physically active is an important part of a healthy lifestyle. ActiveRett is a dedicated resource for helping families support their child with Rett syndrome to keep active.

Each family needs to select the appropriate types and levels of activity that suit their own individual needs and circumstances.

Through InterRett we collect information on individuals with Rett syndrome on a global level. If you are a participant you can complete your questionnaire here.

News & Events

Thanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

News & Events

Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

Research

Australia, Canada, and New Zealand are all developed nations that are home to Indigenous populations which have historically faced poorer outcomes than their...

Research

This study determined the prevalence of cholelithiasis and/or cholecystectomy in Rett syndrome, described gallbladder function in a clinical cohort, and...

Research

This study investigates relationships between methyl-CpG-binding protein 2 gene (MECP2) mutation type and speech-language abilities in girls with Rett syndrome.

Research

We aimed to establish the prevalence of RHD in high-risk Indigenous Australian children using these criteria and to compare the findings with a group of...