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Family resources

Rett Syndrome Association of Australia and ANZACRett are two family-oriented organisations.

How to get active

Considering one’s own capacity, activity should be included into everyone’s daily routine to make sure these recommended levels of activity are being as closely met as possible, for everyone to secure the most benefits.

Toolkit of uptime strategies

Learn about a practical toolkit of strategies to maximize uptime for children with Rett Syndrome, promoting engagement and facilitating meaningful activities.

News & Events

The InterRett database: Looking back and looking forward. What we have done and can do with your involvement!

Click the photo below to download Dr Helen Leonard's online webinar hosted by Rettsyndrome.org.

News & Events

Meeting with families in China

Prof Helen Leonard and Dr Jenny Downs recently visited Shenzhen, China to meet Chinese families and child neurologists from the Shenzhen Children's Hospital.

News and events

We recognise that we can learn a lot from our families. This area of research looks at the reasons why families living with diabetes choose whether or not to participate in research.

News & Events

Seed Funding Grants

The Rio Tinto Children's Diabetes Centre; a Breakthrough T1D Centre of Excellence is excited the announce the latest round of seed funding recipients.

News & Events

DiabHQ Patient Portal update

The DiabHQ Patient Portal App is coming soon!