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Born two weeks early, six-month-old Braxton Lewis’ entry to the world could have been vastly different if not for a service dedicated to improving pregnancy outcomes for Aboriginal women in WA’s East Pilbara.
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For pregnant Aboriginal women living in WA’s East Pilbara, significant issues systematically impede their pregnancy journey and a safe and healthy start to life for their babies.
Early in the consultation phase of the project, local Elders through Hedland Aboriginal Strong Leaders, education representatives and others identified that vulnerable families needed help navigating and accessing local support services that were already available in Port Hedland.
Learn more about our people - the dedicated researchers and staff working to address Rett syndrome, CDKL5 and other related disorders.
We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
Rett syndrome is one of the 8,000 rare genetic diseases that collectively affect up to 10% of the population.
Anyone who engages in physical activity, regardless of how much they do, can achieve mental, physical and social health benefits, resulting in benefits to their quality of life.