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News & Events

The Silent Angel

Taylor is a remarkable young woman with Rett Syndrome who is leading an active country life with the support of her family and the local community.

News & Events

High Tea for Rett Syndome at Caversham House

Thanks for everyone who have contributed to and participated in this wonderful event to raise much needed funds to support Rett Syndrome research!

Family satisfaction following spinal fusion in Rett syndrome: a cohort study

This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.

Physical and mental health of mothers caring for a child with Rett syndrome

We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.

Behavior and mutation type

We also wanted to find out whether any particular behaviours were associated with any specific mutation types.

A validation study of a modified Bouchard activity record

We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.

About

Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.

Research

Relationships between Psychosocial Resilience and Physical Health Status of Western Australian Urban Aboriginal Youth

The aim of this study was to investigate the extent to which factors previously documented as buffering the impact of high-risk family environments on...

Research

Effect of amino acid polymorphisms of house dust mite Der p 2 variants on allergic sensitization

Measures of allergic sensitization and therapeutic strategies could be optimized with knowledge of Der p 2 variants

Research

It takes a village to raise a child: The influence and impact of playgroups across Australia

Comprehensive quantitative and qualitative evaluation of Community Playgroups across Australia