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We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
Discover the news and events of the Rett syndrome and related disorders team, and find out what the team is working on in the fields of children disorders.
News & Events
HBF Run for a Reason 2014On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.
News & Events
"You can't stop loving them" - a grandmother's story about her granddaughter who has Rett syndromeYou can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.
News & Events
The Rett Syndrome Journey: Pathways to FollowOur InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.
ORIGINS is an interventional cohort study, meaning participants receive timely feedback and an action plan to address any potential abnormalities.
News & Events
Associate Professor Debbie Palmer Awarded Stan Perron Charitable Foundation FellowshipThis fellowship will assist Associate Professor Palmer in her large-scale food allergy prevention trials.
News & Events
ORIGINS is pleased to announce the 2024 recipient of its inaugural PhD Student AwardMiss Braddon will be awarded with $15,000 to go towards her research project, DreamStart
News & Events
Better Your BioMood: First Findings Published in Origins SubprojectFirst Findings Published in Origins Sub-Project