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Rheumatic Heart Disease Endgame Strategy: what does it mean to community?

Across Australia, more than 5,000 Aboriginal and Torres Strait Islander people are currently living with rheumatic heart disease (RHD) or its precursor, acute rheumatic fever (ARF).

Bathtime can mean more than just getting clean!

In this new blog, Speech Pathology Lead Aria May explains how bathtime is a great opportunity to support social communication with your child.

What effect does regular exercise have on oxidative stress in people with Down syndrome? A systematic review with meta-analyses

There remains uncertainty about the effect of exercise on oxidative stress in people with Down syndrome

What is leadership?

We hear the word leadership so often, but what does it mean, especially in an online context? Once we understand our role as cyber leaders we are

ACTIVE STRIDES-CP: Protocol for a randomised trial of intensive rehabilitation (combined intensive gait and cycling training) for children with moderate-to-severe bilateral cerebral palsy

For children with cerebral palsy (CP), who are marginally ambulant, gross motor capacity peaks between 6 and 7 years of age with a subsequent clinical decline, impacting their ability to engage in physical activity. Active Strides-CP is a novel package of physiotherapy targeting body functions, activity and participation outcomes for children with bilateral CP. This study will compare Active Strides-CP to usual care in a multisite randomised waitlist-controlled trial.

What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy

There are limited psychometric data on outcome measures for children with Developmental Epileptic Encephalopathies (DEEs), beyond measuring seizures, and no data to describe meaningful change. This study aimed to explore parent perceptions of important differences in functional abilities that would guide their participation in clinical trials.

What is neurodiversity?

In this blog, Speech Pathologist Emma Corry explores what neurodiversity is, and what it means in the context of supporting autistic children.     Many people may have heard the term “neurodiversity” but what does this term actually mean? In this blog, we are going to dive into the foundations of neurodiversity. 

Twenty years of surveillance in Rett syndrome: what does this tell us?

This study aimed to describe overall survival and adult health in those with Rett syndrome.

Active Strides-CP: Randomised trial of Intensive Rehabilitation (combined Intensive gait and cycling training) for children with moderate to severe bilateral cerebral palsy

Active Strides-CP is an RCT assessing a new treatment for children with moderate to severe CP, combining intensive gait and cycling training to simultaneously address motor and participation outcomes.

What is autism?

Autism is a complex developmental condition which results in differences in the way in which a person interacts, learns and behaves.