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Research

Barriers and Considerations for Diagnosing Rare Diseases in Indigenous Populations

Advances in omics and specifically genomic technologies are increasingly transforming rare disease diagnosis. However, the benefits of these advances are disproportionately experienced within and between populations, with Indigenous populations frequently experiencing diagnostic and therapeutic inequities. The International Rare Disease Research Consortium (IRDiRC) multi-stakeholder partnership has been advancing toward the vision of all people living with a rare disease receiving an accurate diagnosis, care, and available therapy within 1 year of coming to medical attention. In order to further progress toward this vision, IRDiRC has created a taskforce to explore the access barriers to diagnosis of rare genetic diseases faced by Indigenous peoples, with a view of developing recommendations to overcome them.

Research

“Our culture, how it is to be us” — Listening to Aboriginal women about on Country urban birthing

The Birthing on Noongar Boodjar project Aboriginal women's data represents four generations of women's stories, experiences and expressions of childbearing

Research

Reduced forced vital capacity in Aboriginal Australians: Biology or missing evidence?

This editorial article addresses chronic obstructive pulmonary disease and lung function testing in Aboriginal Australians.

Research

The Differential Influence of Contextual Risks on Psychosocial Functioning and Participation of Australian Aboriginal Youth

Methodological issues and implications for interventions to support young Aboriginal people's adaptation are discussed.

Research

What we know about suicide prevention for Aboriginal and Torres Strait Islander peoples

This fact sheet addresses what we currently know about suicide prevention for Aboriginal and Torres Strait Islander peoples.

News & Events

New insights into diabetes in Australian Aboriginal population

The Kids Research Institute Australia have shown that genetic variations that influence BMI and diabetes are similar to those in non-Aboriginal populations.

News & Events

Commitment to Aboriginal Children and Families 2013-2017

Earlier this year we launched our Strategic Plan - Working Together 2013-2017. That statement has been developed into the Commitment to Aboriginal Children.

News & Events

It’s Time – new video on the Apology to the Stolen Generations

It's Time - new video on the Apology to the Stolen Generations

News & Events

Healing precedes a positive future for Indigenous Australians

The Australian Government should form a National Indigenous Healing Foundation to provide compensation to the stolen generations.

News & Events

Remote pools boost Aboriginal child health

A comprehensive study into the impact of swimming pools in remote Aboriginal communities has found significant health and social benefits for children.