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The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
A project led by The Kids Research Institute Australia’s child disability team will seek to reduce potentially preventable hospitalisations and build health literacy for children and young people with intellectual disability.
Principal Research Fellow
Intellectual disability affects more than 1.5% of the population of children in developing countries yet we know little about the daily lives and support...
Data linkage is the bringing together of specific datasets from different sources using demographic information on individuals within a population.
Findings show that indicators of a poor intrauterine environment are associated with an elevated risk of ID, while for ASD, and particularly ASD without ID,...
Our analysis shows that functioning in activities of daily living was related to post-school day occupation. Current health status and behaviour were found...
This study aimed to explore the factors that predict functioning in families with a child with Down syndrome using a mixed methods design.
Family Functioning in Families with a Child with Down syndrome: A Mixed Methods Approach...